Primary Adrenal Insufficiency
BASICS
DESCRIPTION
Deficiency in adrenal gland cortisol and/or aldosterone secretion
EPIDEMIOLOGY
- Etiology and incidence vary by age.
- Newborn period: adrenal insufficiency associated with congenital adrenal hyperplasia (CAH) (1/10,000 to 15,000 live births).
- Infancy or early childhood: adrenal hypoplasia congenita (1/12,500 live births)
- Late infancy or toddler period: adrenocorticotropic hormone (ACTH) unresponsiveness (rare)
- Late in 1st decade of life: Adrenoleukodystrophy presents with neurologic symptoms. Signs and symptoms of adrenal insufficiency in persons with adrenoleukodystrophy may first present at any age (prevalence 1/20,000 to 60,000).
- Late childhood and adolescence: Addison disease (rare); usually presents between the ages of 20 and 50 years (prevalence 1/10,000 adults)
- Sex
- CAH and ACTH unresponsiveness affect both sexes equally.
- Adrenal hypoplasia congenita and adrenoleukodystrophy are both X-linked disorders and predominantly affect males.
- Addison disease is more common in females.
RISK FACTORS
Genetics
- CAH: autosomal recessive inheritance associated with a gene defect in one of multiple adrenal steroidogenic enzymes, most commonly CYP21A2 for the 21-hydroxylase gene
- Adrenal hypoplasia congenita: X-linked mutation in DAX1 gene
- ACTH unresponsiveness: autosomal recessive ACTH receptor defect
- Adrenoleukodystrophy
- X-linked recessive disorder of very-long-chain fatty acid metabolism due to ABCD1 gene mutation
- An autosomal recessive form of the disease exists which presents during infancy.
- Autoimmune adrenal insufficiency
- One cause of Addison disease
- May be isolated or part of autoimmune polyglandular syndromes (APSs)
- AIRE1 gene mutations cause APS type 1.
- APS type 2 is associated with human leukocyte antigens (HLAs) DR3 and DR4.
PATHOPHYSIOLOGY
- CAH: a group of enzymatic disorders of steroid metabolism, of which 21-hydroxylase deficiency is the most common (Appendix IV, Table 13)
- Adrenal hypoplasia congenita: a defect in adrenal organogenesis
- ACTH unresponsiveness
- Inherited ACTH receptor defect, resulting in isolated glucocorticoid deficiency with hypoglycemia in infancy and hyperpigmentation
- Adrenoleukodystrophies
- Inherited disorders of impaired peroxisomal degradation of very-long-chain fatty acids, resulting in adrenal insufficiency and progressive neurologic deterioration
- Addison disease
- Primary hypoadrenalism due to bilateral destruction of the adrenal cortices
- This can be due to autoimmune destruction (isolated or associated with APS), tuberculosis, hemorrhage, fungal infection, neoplastic infiltration, or AIDS.
- Waterhouse-Friderichsen syndrome:
- Bilateral adrenal gland hemorrhage classically associated with fulminant meningococcemia
- Also reported with Staphylococcus aureus and Streptococcus pneumoniae
COMMONLY ASSOCIATED CONDITIONS
- Adrenal hypoplasia congenita is associated with hypogonadotropic hypogonadism.
- APSs are associated with other autoimmune disorders:
- APS type 1: mucocutaneous candidiasis, hypoparathyroidism
- APS type 2: autoimmune thyroid disease, type 1 diabetes
- Both types can also present in conjunction with multiple other autoimmune disorders (e.g., primary ovarian or testicular insufficiency, celiac disease, pernicious anemia, vitiligo, autoimmune hepatitis).
- Adrenoleukodystrophy is associated with progressive neurologic disease.
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Citation
Cabana, Michael D., editor. "Primary Adrenal Insufficiency." 5-Minute Pediatric Consult, 9th ed., Wolters Kluwer, 2025. Pediatrics Central, peds.unboundmedicine.com/pedscentral/view/5-Minute-Pediatric-Consult/617165/all/Primary_Adrenal_Insufficiency.
Primary Adrenal Insufficiency. In: Cabana MDM, ed. 5-Minute Pediatric Consult. Wolters Kluwer; 2025. https://peds.unboundmedicine.com/pedscentral/view/5-Minute-Pediatric-Consult/617165/all/Primary_Adrenal_Insufficiency. Accessed July 12, 2026.
Primary Adrenal Insufficiency. (2025). In Cabana, M. D. (Ed.), 5-Minute Pediatric Consult (9th ed.). Wolters Kluwer. https://peds.unboundmedicine.com/pedscentral/view/5-Minute-Pediatric-Consult/617165/all/Primary_Adrenal_Insufficiency
Primary Adrenal Insufficiency [Internet]. In: Cabana MDM, ed. 5-Minute Pediatric Consult. Wolters Kluwer; 2025. [cited 2026 July 12]. Available from: https://peds.unboundmedicine.com/pedscentral/view/5-Minute-Pediatric-Consult/617165/all/Primary_Adrenal_Insufficiency.
* Article titles in AMA citation format should be in sentence-case
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ED - Cabana,Michael D,
BT - 5-Minute Pediatric Consult
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5-Minute Pediatric Consult

